David making coffee
 Joshua drawing with mum
 Maisie
 Mark writing
 Mother and child
 Zara having a laugh
 Thumbs up!
 Archie on a swing
 ___
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Archives

This page contains links to documents which we hope will be useful for research purposes. Our hope is that we can constantly add to it to build up a comprehensive archive of up-to-date, relevant material.

If you would like to send something that people might like to see here, please contact Simon Howard, email si_howard@hotmail.com, phone +44) (0)20 8265 3604.

Each document opens in a new window, they are all printer friendly.

September 2005 Support Group Newsletter Added February 2006

April 2005 Support Group Newsletter Added February 2006

December 2004 Support Group Newsletter Added February 2005

August 2004 Support Group Newsletter Added February 2005

January 2004 Support Group Newsletter Added June 2004

October 2003 Support Group Newsletter Added June 2004

July 2003 Support Group Newsletter Added June 2004

March 2003 Support Group Newsletter Added June 2004

December 2002 Support Group Newsletter Added May 2003

CHARGE -- working together, added 02/10/99
Produced by Sense -- The National Deafblind & Rubella Association, January 1999
Emphasises the importance of carefully co-ordinated care where there are a large number of professionals involved. Contains practical advice and information to help parents and carers overcome many of the difficulties presented by inadequate communication, and lack of knowledge among professionals dealing with people with CHARGE.

CHARGE -- advice for the early years, added 02/10/99
Produced by Sense -- The National Deafblind & Rubella Association, January 1999
Advice for professionals dealing with people with CHARGE and their families, particularly in the period following diagnosis. Describes practical steps which can be taken by professionals to ease the burden of caring for someone with CHARGE and to come to terms with the condition.


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