Dear Chantelle,
I have a daughter who will turn 17 next week with Charge Syndrome. She is a happy person and has accomplished much in her life so far despite so many challenges. You are 25. What do you do for a living? How is your overall general health? Where do you live? I wonder if you would ever be willing to communicate with my daughter, Alyson, who does not have many friends. People don't appreciate how special she is and can be so cruel in high school. You may be an inspiration to her. You already are to me after I read your email responding to the fact that the label has clearly changed to syndrone. Please write back.