Re: Welcome Back to the CHARGE Family Support Group Forum
Posted by: Jennifer Johnson (IP Logged)
Date: April 21, 2004 12:38PM
Hello, I am the mom of a 2 year old with charge association (from my understanding there is not much difference between the syndrome and the association). Her name is Victoria. She is very precious and I am very proud of her. She is milestones ahead of what her doctors said she would ever do. It is sometimes overwhelming, but you take it day by day and it all WILL work out. I also have a 3 year old daughter, Alyssa. It is hard to find the balance to accomodate both. I know my girls are both blessings and the support from my husband and family make me stronger. Victoria gets OT/PT and speech therapy weekly and it is really making a difference. Take advantage of all the therapy early in her life and it will make a big difference.