CHARGE Family Support Group Forum : chargesyndrome.org.uk
Discuss anything and everything to do with CHARGE.
Re: Welcome Back to the CHARGE Family Support Group Forum
Posted by: Dana (IP Logged)
Date: May 18, 2004 05:22PM
Hi Jenny,
My name is Dana and I too have a daughter with Charge Syndrome and she is 22 months if age, She is such a miracle and I too feel alone sometimes. Other parents dont really understand when you tell them your child is sick again and you really have to change your plans. Or we have to leave the house and take the oxygen,diaper bag, suction machine and the feeding machine for her g-tube. I am so thankful for Samantha (her name) because with all the therapys and surgerys she has come a long way. Please feel free to e-mail me on those long days that you just need to chat.
God Bless
Dana
My name is Dana and I too have a daughter with Charge Syndrome and she is 22 months if age, She is such a miracle and I too feel alone sometimes. Other parents dont really understand when you tell them your child is sick again and you really have to change your plans. Or we have to leave the house and take the oxygen,diaper bag, suction machine and the feeding machine for her g-tube. I am so thankful for Samantha (her name) because with all the therapys and surgerys she has come a long way. Please feel free to e-mail me on those long days that you just need to chat.
God Bless
Dana
Sorry, only registered users may post in this forum.