Hi there

My son Jake was in hospital till 4 months and had a heart op and a gtube in that time. He is now almost 22 months and doing really great touch wood.
This messageboard is very rarely used but there is a UK and a USA YAhoo group. The UK one's adress is [health.groups.yahoo.com] it would be gtreat to have you join us there.
I am in North London but I am sure there is someone not too far from you. Have you joined SENSE? THey are amazing at helping with practical and emotional issues you may have and organise family days where we all meet up every now and again. Charge is not as rare as you may think - you are not alone.

If you want to email me my address is abiroman@hotmail.com

Take care

ABi xxx