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Re: Spina Bifida Occulta
Posted by: jill (IP Logged)
Date: November 21, 2005 05:40AM

my son was born with a sprengle deformity of the left shoulder. He had the deformity corrected at 3 years of age. We discovered it at one year. His left shoulder blade is about 2/3 the size of the right one. He has no other associated abnormalities. He was born at 9 1/2 pounds and is still as strong as an ox. However his shoulder is still up in the air about 1 inch over the other and of course the clavicle is affected still. He is 8 years old now. When they dissected the muscles from the spine to lower the shoulder blade , they also removed a large omnivertebral bone connecting his shoulderblade to his vertebrae. I have wondered about diet during pregnancy because I am a HUGE milk drinker and it was an extra bone that they removed(calcium) I'm talking about a gallon a day and icecream also. However, my mother in law did deliver by cesarean (full term fetal death) in the late 70's (found this out after my son's birth) a girl of about 4 pounds with deformity of the hands(thumb missing on one hand and thumb poorly articulated on other hand) and heart. The autopsy report also says that all limbs seem to be held at an odd angle. I am of course wondering about a genetic connection because children with sprengle's often have more deformities lower on the limb. I am concerned about my son's future and his children and whether or not he just happened to get a lucky break with the isolated deformity of the shoulder and no other problems. I had excellent excellent nutrition during the pregnancy and have never taken a drink or smoke in my life. I am also very healthy and gained 50 pounds during the pregnancy. I am just wondering what anyone else who knows anything has to say about my information. Basically, I am wondering if he made out well in utero because of an optimal environment and whether it could have turned out much worse.



Subject Views Written By Posted
  Spina Bifida Occulta 529 Dee Stainer 08/27/2004 07:22AM
  Re: Spina Bifida Occulta 422 Jesbristow 01/05/2005 10:58PM
  Re: Spina Bifida Occulta 384 sarah B 01/12/2005 11:12AM
  Re: Spina Bifida Occulta 369 caro h 01/28/2005 06:51AM
  Re: Spina Bifida Occulta 361 jill 11/21/2005 05:40AM
  Re: Spina Bifida Occulta 372 A Zanetic 01/18/2006 07:38PM
  Re: Spina Bifida Occulta 331 Chris 02/06/2005 11:48AM
  Re: Spina Bifida Occulta 307 sharon 03/27/2005 07:21AM
  Re: Spina Bifida Occulta 333 Alexander Gray 11/13/2005 01:49AM
  Re: Spina Bifida Occulta 313 angela orr 04/01/2005 03:04AM
  Re: Spina Bifida Occulta 346 A zanetic 05/03/2005 05:23PM
  Re: Spina Bifida Occulta 87 marnixg 05/04/2010 09:14PM
  Re: Spina Bifida Occulta 1224 DIAN ROBERTS 05/12/2005 11:40PM
  Re: Spina Bifida Occulta 312 Kim 07/25/2005 08:22AM
  Re: Spina Bifida Occulta 321 Kristin Morrow 07/30/2005 02:59PM
  Re: Spina Bifida Occulta 283 Shaz 09/03/2005 01:53AM
  Re: Spina Bifida Occulta 300 Nancy Allen 02/14/2005 02:06PM
  Re: Spina Bifida Occulta 296 sharon 03/27/2005 07:19AM
  Re: Spina Bifida Occulta 276 Rozzy 05/07/2005 06:54AM
  Re: Spina Bifida Occulta 275 jane 07/09/2005 08:31AM
  Re: Spina Bifida Occulta 290 Jean 11/08/2005 04:43PM
  Re: Spina Bifida Occulta 260 claire 11/10/2005 09:31AM
  Re: Spina Bifida Occulta 324 Roy 11/12/2005 06:43AM
  Re: Spina Bifida Occulta 310 Erin 12/24/2005 05:19PM
  Re: Spina Bifida Occulta 257 Dana 01/20/2006 01:54PM
  Re: Spina Bifida Occulta 280 A Zanetic 05/07/2005 12:41PM
  Re: Spina Bifida Occulta 281 Rozzy 05/11/2005 11:44PM
  Re: Spina Bifida Occulta 298 A Zanetic 05/12/2005 01:39PM
  Re: Spina Bifida Occulta 288 Sarah L 08/16/2005 11:15PM
  Re: Spina Bifida Occulta 287 Ruth 08/20/2005 10:29AM
  Re: Spina Bifida Occulta 278 Erin 12/24/2005 05:07PM
  Re: Spina Bifida Occulta 304 Marty 11/29/2005 09:01AM
  Re: Spina Bifida Occulta 283 A Zanetic 06/12/2005 05:45PM
  Re: Spina Bifida Occulta 272 A Zanetic 07/15/2005 06:26PM
  Re: Spina Bifida Occulta 267 SARAH 07/22/2005 01:30AM
  Re: Spina Bifida Occulta 285 alexia 07/23/2005 05:29AM
  Re: Spina Bifida Occulta 290 SARAH 07/23/2005 09:56AM
  Re: Spina Bifida Occulta 279 alexia 07/24/2005 10:17AM
  Re: Spina Bifida Occulta 265 sarah 07/28/2005 05:13AM
  Re: Spina Bifida Occulta 282 Caryn 09/02/2005 08:16AM
  Re: Spina Bifida Occulta 279 A Zanetic 07/26/2005 12:34PM
  Re: Spina Bifida Occulta 303 A Zanetic 08/23/2005 05:12PM
  Re: Spina Bifida Occulta 485 hello 08/29/2005 12:07PM
  Re: Spina Bifida Occulta 277 Caryn 09/02/2005 08:22AM
  Re: Spina Bifida Occulta 290 cliff 11/04/2005 03:55AM
  Re: Spina Bifida Occulta 818 Carrie 01/19/2006 07:16PM
  Re: Spina Bifida Occulta 121 garybennrtt 03/17/2010 07:17PM


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