Hi Carol,
Ditto to all that Trevor said. Our daughter Jessica (also 4) has also achieved her various milestones in her own time. She too sat up after one, did not do the traditional crawl (she scooted around on her back, then did bunny hops on all fours on knees until she could walk independently). She too had the various physio and OT supplied bits of equipment including a chair (which she still has at home and at school as she continues to have low muscle tone in her upper body), a standing frame to strengthen her legs once she could weight-bear (this was also good for standing activities such as painting on an easel when she was old enough), a walking frame when she could walk but needed support for balance (similar to the one Trevor describes for Sophie) and now minimal equipment (only chair actually). It is worth getting some info re CHARGE for your physio so s/he understands that it is not uncommon for children with CHARGE to achieve their physical milestones later than usual. If you don't have any, please let us know, can't think whether we have any right now but we can look and send on.

As well as the muscle tone, children with CHARGE do have complex balance probs due to the combination of their sensory issues (and in Jessica's and quite a few other children) the absence of semicircular canals. This would certainly also contribute to sitting as well as standing and walking. The children do tend to need ongoing physio and OT to address some of the ogoing problems. Jessica still has both at school plus hydotherapy.

By the way, Jessica always pushed back to lie down and she still walks around looking upwards, head tilted back. Does Aidan have problems with vision (sorry if I missed this in your last post - am in mad rush). Oh, other thing is that lying on back creates a balance where it is secure in view of all above so he can explore etc more safely. The trach would also obviously play a big part in reluctance to crawl. Don't worry too Much Carol (easier said than done I know). In the world of CHARGE, Aidan's progress is totally normal, but do explore the activities and equipment that are likely ot assist.

Does anyone have David Browns article from the conference on proprioception (I think) for Carol?

Hope this helps a little and sorry it is so rushed that it may not be totally clear, but please come back on it if this is the case.

Best wishes............
Flo