Archie on a swing
 David making coffee
 Joshua drawing with mum
 Maisie
 Mark writing
 Mother and child
 Zara having a laugh
 Thumbs up!
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Links

These are the links we've researched so far. If you know of any other places on the web where we can find useful information relating to CHARGE, please let us know so we can add them here. Email us your discoveries on the web, or phone (+44) 020 8265 3604.


Minnow's CHARGE WebPage is run by the mother of a CHARGE child, it features a range of resources: the CHARGE Syndrome Message Board, CHARGE Syndrome Mailing List, a mailing list for CHARGE teens, and the CHARGE Kids Pix Page, where we can post pictures of our CHARGE kids for all to see -- great for letting distant friends and relatives see how they're getting on, just point them to the page address.

A-Z Deafblindness has lots of information and links concerning deafblindness. This site stresses the importance of inclusive technology and features all sorts of information about access technology which enables deafblind users to access the web and other Intenet resources. The author of this web site is, himself, deafblind.

Sense -- The National Deafblind and Rubella Association (UK), the world's largest organisation working with and campaigning for deafblind people, their families and professionals who work with them.

The National Deaf Children's Society (UK) web site.

Royal National Institute for the Blind (UK) coloboma factsheet

CHARGE Syndrome Foundation (USA) home page. Contains contact details for organisers of regular US CHARGE conferences, and lots of useful information. The Foundation also supplies a CHARGE "manual".

CAUSE home page. Contains details of the CAUSE project

Kennedy's Page is the story of Kennedy, a CHARGE child. It includes details of her surgical history and her ongoing therapies as well as photos of herself and other kids with CHARGE.

Looking at Self-Stimulation in the Pursuit of Leisure, or I'm OK, You Have a Mannersim An interesting discussion of the way deafblind people use "self-stim" behaviours to relax, and the similarity of this form of relaxation to some of the habits all of us display everyday.

A Deafblindess Web Resource Contains a list of very useful links.

Contact a Family Contact a Family provides support and advice to parents whatever the medical condition of their child.

Children's Heart Federation Gives a description of what the CHF does and also supplies information about heart conditions, heart units etc.

CHARGE Syndrome Canada A Canadian CHARGE group (currently setting up charitable status) involving both families and professionals.

Website of Timothy S Hartshorne Website of Tim Hartshorne, a Doctor of Educational Psychology and father of a boy with CHARGE. Tim's site contains a section on CHARGE, with many papers he has written on the behavioural aspects of CHARGE available here.


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