CONTACT US
Having a family member with a rare condition can feel very isolating. We aim to change that. Please don’t hesitate to contact us. 

Our email address is: info@chargesyndrome.org.uk

First point of contact: Simon Howard, 59 Elmer Road, London, SE6 2HA
Telephone: 020 8265 3604

email: si_howard@hotmail.com

Click here for the Commitee members