Introduction

Your support is vital to help us be there for people with CHARGE and their families. Currently we rely on funding from donations and fundraising activities by families, friends and local communities.

In this Section

Latest News

Lining up to walk the 50k Thames path challenge.

One of the easiest ways to donate or raise money for our charity is to use the online fundraising platform Givey.com. 

Simply click on the link below and click on the Donate button or the Start Fundraising button.

https://www.givey.com/chargesyndromeuk

Be sure to also contact us to let you know about your fundraising so we can support you and thank you for your amazing efforts!

 

You can also use EasyFundraising to raise money for the charity. Every time you buy something online through EasyFundraising, you will be also raising money for the charity, at no cost to you!

 

Latest News

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Posted on Wednesday 6 April 2022

CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…

Tyrese Dibba stars in animated class

Tyrese Dibba stars in animated class

Posted on Tuesday 22 March 2022

A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.

A Walk for Charge

A Walk for Charge

Posted on Tuesday 11 January 2022

Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.