The CHARGE Family Support Group is the UK’s registered charity for people with CHARGE Syndrome and their families.
The group’s aim is to create a positive, supportive network of individuals, parents, families and professionals to share ideas, experiences, information and give vital support.
The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome.
The group publishes a regular newsletter and can put families in touch with each other, for instance, to help tackle a particular issue or to find other families living locally.