Introduction

Your support is vital to help us be there for people with CHARGE and their families. Currently we rely on funding from donations and fundraising activities by families, friends and local communities. There are plenty of ways we can spend your money and fortunately even more ways you can raise it as well!

In this Section

Latest News

 Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

 

Lining up to walk the 50k Thames path challenge.

How about :

• Running 10km
• Bathing in jelly
• Jumping out of a plane
• Holding a coffee morning
• Playing some charity bingo
• Donating money instead of buying Christmas cards.

We are more than happy to help you with your endeavours. Get in touch if you need sponsorship forms, help with paying the entry fee to a race or a few friendly faces when you cross the finish line. If flinging yourself out of a plane isn’t your idea of fun please go to our Donate Now Page.

So the next time you think someone is going to give you socks for Christmas, your employer is nominating a charity or your local Rotary wants a good cause to support please think of us.

Please contact Martin Stevens with any queries relating to fundraising (martin.stevens.ms@gmail.com / 07957542938)

 

Latest News

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.

Posted on Wednesday 6 April 2022

CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with neurological and behavioural conditions like intellectual disability, attention deficit disorder, conv…

Tyrese Dibba stars in animated class

Tyrese Dibba stars in animated class

Posted on Tuesday 22 March 2022

A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-19 lockdown is being turned into an animated character in new lessons.

A Walk for Charge

A Walk for Charge

Posted on Tuesday 11 January 2022

Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory of his son that passed away having been diagnosed with CHARGE Syndrome which is a rare genetic dise…

Behaviour In Charge Syndrome Online Questionnaire Study

Behaviour In Charge Syndrome Online Questionnaire Study

Posted on Tuesday 8 December 2020

Study looking at a range of behaviours, skills and impairments in CHARGE syndrome.