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Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Miracle Monday: Spokane parents share joy of reading with sick kids after son's death - KXLY Spokane

2/4/2019 9:00:00 AM

Miracle Monday: Spokane parents share joy of reading with sick kids after son's death  KXLY SpokaneA Spokane Valley couple is channeling their grief into something that will help thousands of sick children.

Athlone pensioner's feeding drive benefits poor, needy children | Cape Times - Independent Online

1/30/2019 9:00:00 AM

Athlone pensioner's feeding drive benefits poor, needy children | Cape Times  Independent OnlineShe has made it her mission to not let children go to school and to bed on empty stomachs through Soffiyah's Feeding Scheme.

Aberdeen family’s anguish as baby born with three holes in heart and just one kidney - Aberdeen Evening Express

1/22/2019 9:00:00 AM

Aberdeen family’s anguish as baby born with three holes in heart and just one kidney  Aberdeen Evening ExpressParents of an Aberdeen baby born with three holes in the heart and one kidney say they are holding out hope they'll be able to take their “strong little man” home ...

Birthday party raises money for CHARGE syndrome patients - WKRC TV Cincinnati

9/29/2018 9:00:00 AM

Birthday party raises money for CHARGE syndrome patients  WKRC TV CincinnatiLOVELAND, Ohio (WKRC) - A birthday party was held on Saturday at Grand Sands to raise money for those living with a rare syndrome, while remembering a ...

Mum's tribute to Leila who battled CHARGE Syndrome - Gazette

7/16/2018 9:00:00 AM

Mum's tribute to Leila who battled CHARGE Syndrome  Gazette'Social butterfly' Leila died aged just six.

Latest News

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Posted on Thursday 9 November 2017

The Ultimate Guide to Adapting Your Home If You have Visual Impairment