In this Section
National Conference and Family Weekend AnnouncedSunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
join easyfundraising to help raise money while you shopTuesday, January 09, 2018
Join easyfundraising and you can collect free donations for us every time you buy something online. …
Merry Christmas and a Happy New YearThursday, January 04, 2018
A Christmas message from the Team
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WKRC TV CincinnatiBirthday party raises money for CHARGE syndrome patientsWKRC TV CincinnatiConnor Logsdon was 15 months old when he passed away from CHARGE syndrome. A birthday party was held on what would've been his sixth birthday. The event was held to raise money for "Charge for Connor," a non-profit organization started by his ...
Birmingham Business JournalScenes from the 2018 Kinetic CupBirmingham Business Journal... Hunter Finch, Watson Donald, John Brandt and Hunter Bridwell. It came down to Flint and Knight in the finals, with Flint taking the championship. The fourth annual event raised more than $6,500 for CHARGE Syndrome. Check out the tournament bracket ...
Michigan Medicine (blog)Children's Book About Transplant Surgery Inspired by Young PatientMichigan Medicine (blog)Explaining a transplant to any child is difficult, but this case presented a unique challenge: Noah has CHARGE syndrome, a rare genetic disorder that in his case caused him to be born with kidney failure, deafness and delayed development. Unable to ...
UKNow (press release)UK Researcher Receives Nearly $1.9 Million to Study Retinal RegenerationUKNow (press release)In addition to funding from the NIH, Morris was a recipient of the Pew Foundation's Biomedical Scholar award from 2011-2015, and has received grants from the Fight for Sight Foundation, the Knights Templar Eye Foundation and the CHARGE Syndrome ...and more »