In this Section
National Conference and Family Weekend AnnouncedSunday, March 18, 2018
The national conference is a different type of event to the regional family days (which are great!) …
join easyfundraising to help raise money while you shopTuesday, January 09, 2018
Join easyfundraising and you can collect free donations for us every time you buy something online. …
Merry Christmas and a Happy New YearThursday, January 04, 2018
A Christmas message from the Team
Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page.
Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that.
News From Google
Miracle Monday: Spokane parents share joy of reading with sick kids after son's death KXLY SpokaneA Spokane Valley couple is channeling their grief into something that will help thousands of sick children.
Athlone pensioner's feeding drive benefits poor, needy children | Cape Times Independent OnlineShe has made it her mission to not let children go to school and to bed on empty stomachs through Soffiyah's Feeding Scheme.
Aberdeen family’s anguish as baby born with three holes in heart and just one kidney Aberdeen Evening ExpressParents of an Aberdeen baby born with three holes in the heart and one kidney say they are holding out hope they'll be able to take their “strong little man” home ...
Birthday party raises money for CHARGE syndrome patients WKRC TV CincinnatiLOVELAND, Ohio (WKRC) - A birthday party was held on Saturday at Grand Sands to raise money for those living with a rare syndrome, while remembering a ...
Mum's tribute to Leila who battled CHARGE Syndrome Gazette'Social butterfly' Leila died aged just six.