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Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

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11/18/2017 3:36:28 AM

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Irvine Girl Hopes You Will Send Her Birthday, Christmas Cards - LEX18 Lexington KY News

11/16/2017 4:18:15 PM

LEX18 Lexington KY NewsIrvine Girl Hopes You Will Send Her Birthday, Christmas CardsLEX18 Lexington KY NewsHer mother tells LEX 18 that she has been facing Charge Syndrome her entire life. But the medical challenges she faces have not dampened her joy. The messages she has received so far have made her incredibly happy. She hit 500 cards last year and ...

Michigan, Illinois Students Win Regional Siemens Competition at ... - Business Wire (press release)

11/6/2017 6:05:30 PM

Michigan, Illinois Students Win Regional Siemens Competition at ...Business Wire (press release)Three students have been named National Finalists in the Siemens Competition in Math, Science & Technology after earning top spots in one of t.and more »

Caretaker caught on nanny cam allegedly abusing special-needs child - New York Post

11/2/2017 9:34:07 PM

New York PostCaretaker caught on nanny cam allegedly abusing special-needs childNew York PostBertagna said Felix also “wasn't giving any attention to the child,” who needs constant care due to CHARGE syndrome. The genetic condition includes symptoms such as heart defects, vision problems, ear abnormalities and delayed growth, according to the ...Male nurse, 54, is caught on a nanny camera 'kicking, pinching and ignoring a six-year-old boy with special needs ...Daily MailNanny cam captures nurse appearing to shove special needs child off his lap, 'physically assault' himNational PostVideo shows nurse appear to kick, ignore 6-year-old with special ...CW39New York Daily News -FOX 11 Los Angeles -Patch.comall 12 news articles »

Caretaker of child with genetic disorder arrested on suspicion of ... - KABC-TV

11/2/2017 2:30:14 AM

KABC-TVCaretaker of child with genetic disorder arrested on suspicion of ...KABC-TVFootage captured on a nanny camera shows an in-home nurse kicking a 6-year-old child in Santa Ana.and more »

Latest News

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Posted on Thursday 9 November 2017

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Wedding anniversary raises money

Wedding anniversary raises money

Posted on Wednesday 6 September 2017

Author gives all proceeds of his first book the charge

Author gives all proceeds of his first book the charge

Posted on Wednesday 6 September 2017

New author gives all proceeds of his first book the charge this book was written by a family member of young person with charge and i can safely say that it is well worth a read. if you are after a fi…

Charge Family Day London 2017

Charge Family Day London 2017

Posted on Tuesday 8 August 2017

the family days are an occasion where parents can relax and socialise while their children explore learning and creativity with hydro pool therapy and sensory play