Introduction

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

In this Section

Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

News From Google

Growth in CHARGE syndrome: optimizing care with a multidisciplinary ap | JMDH - Dove Medical Press

8/1/2019 8:00:00 AM

Growth in CHARGE syndrome: optimizing care with a multidisciplinary ap | JMDH  Dove Medical Press

FDA issues CRL for Enzyvant's congenital athymia therapy - BioWorld Online

12/5/2019 5:00:00 PM

FDA issues CRL for Enzyvant's congenital athymia therapy  BioWorld Online

MIKE MASTERSON: A son's gift - NWAOnline

11/17/2019 8:00:00 AM

MIKE MASTERSON: A son's gift  NWAOnline

CHARGE syndrome doesn't stop Makenna Susil - Zanesville Times Recorder

11/8/2019 8:00:00 AM

CHARGE syndrome doesn't stop Makenna Susil  Zanesville Times Recorder

Family hope to give disabled teenager her own private space - White Horse News

12/3/2019 1:34:40 PM

Family hope to give disabled teenager her own private space  White Horse News

Latest News

Rachel on the Run

Rachel on the Run

Posted on Friday 19 April 2019

I'm running the London Marathon to raise funds and awareness for the CHARGE Family Support Group.

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team