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Latest News

Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us  page. 

Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that. 

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6/25/2018 3:59:59 AM

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Governor too leaves additional charge syndrome unaddressed in higher echelons of civil admin - Kashmir News Service (press release)

6/22/2018 3:47:37 PM

Kashmir News Service (press release)Governor too leaves additional charge syndrome unaddressed in higher echelons of civil adminKashmir News Service (press release)Srinagar, Jun 22 (KNS): though Governor N N Vohra in his first dose of transfers in the higher echelons of bureaucracy left additional charge syndrome unaddressed as junior officers continue to hold the charge of key departments as Administrative ...and more »

Taliah bravely confronts CHARGE Syndrome - San Diego Jewish World

6/15/2018 12:00:50 AM

San Diego Jewish WorldTaliah bravely confronts CHARGE SyndromeSan Diego Jewish WorldUnlike her peers, Taliah is living with CHARGE Syndrome. CHARGE is a rare and complex genetic syndrome with multiple issues, often difficult to identify. Children with this syndrome face many challenges in the sensory areas with vision and hearing ...

In its 24th year, Camp Barnabas to serve record number of campers - Springfield News-Leader

6/21/2018 4:00:14 PM

Springfield News-LeaderIn its 24th year, Camp Barnabas to serve record number of campersSpringfield News-LeaderWhen Chance Presley was adopted, doctors warned his new mom that he wouldn't live to be 5. Though he proved those doctors wrong, the 18-year-old has spent his life in and out of hospitals. Chance was born with Charge Syndrome, a rare and ...

Scientists learn more about how gene linked to autism affects brain - EurekAlert (press release)

6/18/2018 5:03:23 PM

EurekAlert (press release)Scientists learn more about how gene linked to autism affects brainEurekAlert (press release)Funding support for the research came in part from: National Institutes of Health (R01NS072427, R01NS075243); the National Multiple Sclerosis Society (RG1508, NMSS RG-1501-02851); the CHARGE syndrome Foundation; the National Natural Science ...and more »

Latest News

National Conference and Family Weekend Announced

National Conference and Family Weekend Announced

Posted on Sunday 18 March 2018

The national conference is a different type of event to the regional family days (which are great!) in that it provides an opportunity for families to attend talks, workshops, and have 1-1 consultatio…

join easyfundraising to help raise money while you shop

join easyfundraising to help raise money while you shop

Posted on Tuesday 9 January 2018

Join easyfundraising and you can collect free donations for us every time you buy something online. It won't cost you a penny extra so please help us to raise funds.

Merry Christmas and a Happy New Year

Merry Christmas and a Happy New Year

Posted on Thursday 4 January 2018

A Christmas message from the Team

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

The Ultimate Guide to Adapting Your Home If You have Visual Impairment

Posted on Thursday 9 November 2017

The Ultimate Guide to Adapting Your Home If You have Visual Impairment