In this Section
Latest News
-
Improving our understanding of the neurodevelopmental disorders caused by CHARGE syndrome could open the way for new treatments.
Wednesday, April 6, 2022
CHARGE syndrome, which affects approximately one in 10,000 newborns worldwide, is associated with ne…
-
Tyrese Dibba stars in animated class
Tuesday, March 22, 2022
A teenager who helped thousands of people learn British Sign Language (BSL) during the first Covid-1…
-
A Walk for Charge
Tuesday, January 11, 2022
Taidgh Hughes with family and friends will be making an epic walk along the Jurassic coast in memory…
Find all our news here. We will endeavour to keep the news updated but we will need help from the community. If you have anything that you would like to submit as news to the site, then please contact us at our Contact Us page.
Our newsletter is available in both PDF and web formats. The newsletter is a seasonal publication, so we hope to have the document available tri-monthly; however, it does not always work out like that.
News From Google
Man with rare disorder to skate for Team GB - BBC
8/13/2026 8:00:00 AMMan with rare disorder to skate for Team GB BBC
What’s New in CHARGE Syndrome Research: A 2024–2026 Update - 3billion
3/27/2026 5:18:22 PMWhat’s New in CHARGE Syndrome Research: A 2024–2026 Update 3billion
Mum fears deaf son is missing out at school due to BSL gap - bbc.co.uk
6/24/2026 8:00:00 AMMum fears deaf son is missing out at school due to BSL gap bbc.co.uk
Huntingdonshire mum remembers 'tenacious' son who lived with rare genetic disorder - The Hunts Post
5/12/2026 8:00:00 AMHuntingdonshire mum remembers 'tenacious' son who lived with rare genetic disorder The Hunts Post
6/8/2026 7:48:19 AMIsolated absent pulmonary valve syndrome with intact ventricular septum in a child with CHARGE syndrome: a rare case report and review of the literature Frontiers
Self-directed supports are crucial for people with CHARGE syndrome - Columbia Missourian
5/5/2026 8:00:00 AMSelf-directed supports are crucial for people with CHARGE syndrome Columbia Missourian
2/25/2025 8:00:00 AMBeyond CHD7 gene: unveiling genetic diversity in clinically suspected CHARGE syndrome | Journal of Human Genetics Nature
6/17/2025 8:00:00 AMGastrointestinal Issues in CHARGE Syndrome: Prevalence, Patterns, and Constipation‐Related Quality of Life Wiley Online Library
Seventh grader with CHARGE syndrome shows blindness is no barrier - WGAL
9/3/2026 8:00:00 AMSeventh grader with CHARGE syndrome shows blindness is no barrier WGAL
Deafblind girl, 7, nominated for national award - bbc.co.uk
10/24/2025 8:00:00 AMDeafblind girl, 7, nominated for national award bbc.co.uk
